Below you can find some links to websites with information concerning amyloid and amyloidosis

 

bulletThe highly informative short movie Amyloidosis Awareness made by Greg Singer about amyloidosis can be viewed after clicking on this  weblink. This movie in smaller format with subtitles in different languages can be viewed via this weblink of Youtube.

 

 

bulletInformation about the International Society of Amyloidosis (ISA)

 

bulletInformation from the amyloid centre in Boston (USA)

 

bulletInformation from the amyloid centre in Rochester (USA)

 

bulletInformation from the amyloid centre in Londen (UK)

 

bulletInformation from the amyloid centre in Pavia (italy)

 

bulletInformation from the amyloid centre in Heidelberg (Germany)

 

bulletGerman website about amyloid

 

bulletInteresting American website: Amyloidosis Foundation

 

bulletInteresting American website: Amyloidosis Support Groups and the connected group websites such as about familial amyloidosis

 

bulletInteresting Australian website: Amyloidosis Australia

 

bulletAmerican on-line mailing list for patients with amyloidosis

 

bulletDutch website with information for patients with amyloidosis (Dutch Foundation of patients with Amyloidosis)

 

bulletDutch chart of knowledge, a website with information for Dutch patients with amyloidosis

 

bulletDutch website with information about ATTR amyloidosis (supported by Pfizer)

 

bulletAmyloid: J Protein Folding Disord (medical journal about amyloid, starting with the issues of 2004)

 

bulletTreatment protocol (HOVON) in The Netherlands of patients with AL amyloidosis

 

bulletA European research consortium (EURAMY) started with close collaboration in 2006

 

bulletThe Familial Amyloidotic Polyneuropathy World Transplant Register (FAPWTR) and the Domino Transplant Register

 

bulletA website for the recognition of familial ATTR amyloidosis (supported by Pfizer)

 

bulletThe Registry of mutations of amyloid proteins and of hereditary auto-inflammatory diseases